two steps forward, one step back, two steps to the side

Img_2984 As I witness life with my hands tied behind my back and my heart pounding loudly and echoing off the canyon’s wall… I am not afraid but wearing thin.

As I listen to the unanswerable question – why, especially as it runs around poking at the festering wound then hides. It causes me to look around and doubt my choices, my response and myself. I find my energy nearing the breaking point.

Then to hear the insensitive suggestion, "Feed him less." It makes me want to throw up, pulls me to a dark corner where I see death as a gift and then shudder at the avenue. Ah the places one will go to when one is desperate…. for a change.

To know the well meaning response, "If there is anything I can do-" as a token of friendship. Knowing there is plenty to do, but most things seem trivial to ask for compared to the real unsolvable thing at hand. It is the lack of control, the letting go, the nodding of the head, the thank you for asking, and realizing that the next moment is not in our control. Friendship is a damn good offer.

Img_3051

The constant watching, thinking, analyzing, directing, deciding, listening, praying and the lack of sleeping…the constant wave, no tidal wave against the empty shore.

Am I tired… yes.

How do I do it… with these words, "Do unto others as you would want them to do unto you."

Is my father getting better? He is 81, his heart is strong, but he is very weak, and slowly recovering and slipping at the same time. As my brother Mathew has said about dad, "He takes two steps forward, one step back, two steps to the side."

The thinking part of me realizes that my father has lived a good life, has reached old age, and that his time has come… but the feeling part of me aches at what I see…

I lied, I am not tired, I am exhausted- as is my father and my mother. I shouldn’t complain but that is how it is and there isn’t anything to do but to wake up and face the day with grace and courage.



Comments

97 responses to “two steps forward, one step back, two steps to the side”

  1. Julie Ann

    Oh Corey, how real these words are. Of course you are exhausted. Apart from all the emotion, hospitals are exhausting places on so many levels. Life soon teaches that nothing is ever black and white, I think decisions become more difficult and multi-faceted with every passing year. That is being grown up I think and why we dream of the innocence of childhood. On Saturday we took my step son bowling and the scream of pure joy for each bowl (wherever it landed!) caught in my throat. The age of innocence ! This awful debilitating and draining time will end for you, and in the meantime you are entitled to feel exhausted, frustrated, emotional and grouchy. You are always in my thoughts and prayers, Jx

  2. Your words deeply touch my heart as always.
    I love you
    I pray for you~
    I wish I lived closer.
    I would be there to help in any way you wanted me to.
    I send my love
    God bless you all real good.
    Love Jeanne

  3. Paula Bogdan

    Yes, you are exhausted. Of course, you are. The week of my mother’s dying still runs vividly through my mind almost 4 years later. A very long week spent in a hospital, saying goodbye, letting go of control, and of all that was precious to me. You are showing incredible strength, courage, and grace. You will continue to do so. I know that. From somewhere deep inside of us, we pull it out. It’s a gift to your dad, to your family, to yourself. You continue to be in my prayers.

  4. Corey,
    There is no easy way…
    One hour, one day at a time.
    I ask God to give you strength and wisdom.
    rel

  5. Dear Corey
    Of course you will be exhausted, as strong as you are this is such an emotional time. In addition you have to go through this without your husband and children by your side….very very difficult. No doubt you are thinking of them constantly and how they are as well.
    Not an easy time at all for any of you. Remember that you are in many people’s thoughts and take strength from that, but also allow yourself to say….you are exhausted, this is unfair and allow yourself to cry. That alone helps to heal.
    Take care
    Kathy

  6. have been reading constantly but time again to comment – may strength be yours – this vigil is one of THE toughtest things you wlll ever do and you are watching over one of the most important LOVED men in your life.
    I do remember when we were watching over Dad my brother saying “If one more well intentioned person asks how Dad is doing I am just going to say – he is dying thanks !” – such was his point of exhaustion!
    Hugs from the Blue Mountains

  7. tip toes

    Dear Corey,
    I have been reading your blog for a long time now. the first thing i do when i turn on my computer is to check if there is any good news from your dad.
    i understand you so well. me and my family went through something very similar years ago. it was straining to say the least and i being the oldest daughter felt so responsible and powerless. i remeber me crying and just wanting it to stop that i could go back to work go back to my normal life – i didn’t even care about the consequences. in the next minute i hated myself for being so selfish. but now i think the human body and soule can only take that much and it is ok if we feel tired exhausted and helpless.
    i was never brought up religiously but at that time i think god and i were closer than ever. i remeber going to a curch (a couple of days after my breakdown) and lighting a candle. and as i placed the candle on the little shelf sunlight came streaming through the curch window and spotted my little candle. i left the curch knowing that things would finally be alright and that i just have to take it step by step and not be scared of things to come.
    i know this is not much help for you at the moment and i wish soo much that i could do something to comfort you. something you could smile at and regain some strength from. i can’t think of anything but i want you to know that part of my heart is with your dad and your family.
    take care and cry like hell it really helps and has a healing effect,
    regards from Vienna, Erica

  8. Corey… thank you for your honest words here, raw and real and so eloquent in describing the confusion, ambivalence and transition from holding on to letting go.
    Your family is in my thoughts and prayers.

  9. Corey you express it all so well, even from the depths of your exhaustion, so we can feel for you and relate – even though I’ve never experienced such a long and intense vigil as yours.
    I’m feeling grumpy after just two weeks of sick children with flu, which I feel a little ashamed of after comparing it to what you’re going through. I’m sending you lots of love and thoughts from here.

  10. You must be exhausted – physically and emotionally. And the lack of sleep only fuels that fire. I am glad you are being honest because hiding these feelings would only internalize them and make them fester. Sending positive thought and prayers your way Corey…
    Joy
    xo

  11. Oh dear Corey. What you are describing is so very confusing and hard on the human spirit. With every ounce of our being we choose life but what kind of “life” will there be? I found myself in the same situation with my grandmother, whose lungs were too damaged to breathe, gasping for each and every breath….as she struggled, her life in the balance ~ my wish for her was peace….a rest from this life and to begin the next…My thoughts and prayers are with you, much love and warm hugs, Dawn

  12. My Melange

    Corey,
    Of course you are tired. You are allowed to be tired for what you are doing. Your father (and Mother) will always remember this selfless gift of your company and your precious time.
    Don’t forget to take care of yourself too!
    You are in my thoughts and prayers. Everyday.

  13. Corey, I can be along with you. I hope you feel my radiating thoughts and prayers through cyberspace. I’m praying for the best outcome for your father.

  14. Your tiredness is emotional as well as physical.Maybe someone else could spend a night with your Dad so you could get some good uninterupted sleep? It’s amazing how theraputic it is.
    I too am a firm believer in do unto others…
    You are a good daughter Corey, because they have been good parents..
    hugs
    xx

  15. Ann @ Holy Experience

    I pray today for grace and courage: grace for one step, courage for the next.
    He carries you, friend

  16. Dying slowly is a hard way to live. It does not seem to me that what you are doing is complaining – it is more a searching of your mind for words to explain how your heart aches. Sometimes there are no words, even for comforting. Then you just have to rest in the knowledge that this, too, shall pass.

  17. angela marie

    My dear Corey,
    I understand… gone through this with my own father, and now to watch my husband go through it also.
    I understand.
    ((((big warm hug))))
    I am praying for you and your family

  18. Dear Corey, you are so entitled of being tired. It’s such a natural thing to feel now after these last times you’ve lived. Just don’t forget to take care of you too, while you watch and care for your sweet dad. I’m sure he wants you to be fine as well.
    It must not be easy, but God is looking after you, your dad and your family.
    Big hug full of friendship*
    Love*

  19. I ache for you all today. Your honesty is so compelling. I have said it before and I say it again…your selflessness is unimaginable to to me. My Mom is 89 and I ask myself everyday if I could do what you are doing. So far the answer is no, but I don’t think any of us can truly know what we will do until the moment comes. I don’t know if sleep can restore you right now but I hope you can get a couple of nights uninteruped rest. You are an inspiration through your words and actions. Love, Gayle

  20. The length of time you’ve been doing this is astounding and all consumingly exhausting.
    It’s a testament to how well your father lived his life and treated you as his daughter for you to have the devotion you do.
    And it’s a testament to the extraordinary person that you are.

  21. AmandaMay

    Your grace and courage show through in every post here. Your father must be a wonderful man to have such loving and supportive and amazing family surrounding him in this difficult time.

  22. I pray for you and your family…
    Your heart is hurting, your body is tired and your mind is questioning.
    It is ok to ask for help,
    It is ok to say I need ….
    Louise

  23. Melissa’s Cozy Teacup

    Dear, precious Corey my heart is aching for all of you.

  24. I remember my own dad in the hospital. The worst thing was learning that I had no control of the situation. I thought I controlled my
    job, my child, my home, but I found out I
    controlled nothing at all. It remains a difficult lesson….but you are always there
    with your father sharing the tough times.
    You are a wonderful daughter.

  25. Corey, my mother went into the hospital in november 2007 for stomach surgery. Unfortunately, though the surgery went well, she got *all* the complications that the doctor had warned us about – pneumonia, infections etc. etc. She was finally transferred to a convalescent home one week ago after 5 months in the hospital. Your brother’s comment about *taking side steps* is EXACTLY what I see my mother doing. I have been reading your posts, and they could have been written by me – yes, I am tired too! Exhausted mentally and physically!!! I hear you !
    Hugs,
    Maria

  26. Corey,
    I’m so sorry for what you are going through. I’m sure anything I have to say is much like the ‘is there anything we can do ‘. Just know there are many who are thinking of you and praying for your family. I pray for you strength and wisdom and much love to come your way. You are clearly a woman of much love.
    Go ahead and ask for the trivial. I believe people really do want to help, but just don’t know what to do.
    God bless you!

  27. Corey,
    I’ve been reading your posts for months now, and sometimes you just can’t find the right words. It’s like crying when you don’t know what to pray for. Your tears become your prayer. This is one of my favorite poems. I hope it touches your heart.
    WAITING
    by: John Burroughs (1837-1921)
    SERENE, I fold my hands and wait,
    Nor care for wind, nor tide, nor sea;
    I rave no more ‘gainst time or fate,
    For, lo! my own shall come to me.
    I stay my haste, I make delays,
    For what avails this eager pace?
    I stand amid the eternal ways,
    And what is mine shall know my face.
    Asleep, awake, by night or day,
    The friends I seek are seeking me;
    No wind can drive my bark astray,
    Nor change the tide of destiny.
    What matter if I stand alone?
    I wait with joy the coming years;
    My heart shall reap where it hath sown,
    And garner up its fruit of tears.
    The waters know their own and draw
    The brook that springs in yonder height;
    So flows the good with equal law
    Unto the soul of pure delight.
    The stars come nightly to the sky;
    The tidal wave unto the sea;
    Nor time, nor space, nor deep, nor high,
    Can keep my own away from me.

  28. All I know to do is ~
    HUG

  29. May the strength & prayers of others shore you up, at least for today. May an angel show up to offer some respite, some peace, some hope.
    Waiting, being unable to truly “do something”, is the worst part.

  30. Saying a prayer for you and sending you {{hugs}}

  31. ah…your words..so honest.real.raw… and so moving reminding us how fragile life truly is and the importance of faith,prayer,family, friends…. thank you for all you give to us Corey… we love you and send you a soft cyber pillow to lay your weary head on.

  32. Ed in Willows

    Corey – What can I say that the others haven’t already said. Your exhaustion is understandable and nobody would ever accuse you of complaining. Your strength and dedication is inspiring. Friendship is a precious gift and I offer mine unending.
    Sending you strength – Ed

  33. Miss Sandy

    Corey,
    This is my prayer for you today:
    That you will be given strength in your weariness, an increase of power in your weakness, that you will walk this path and be not weary, that you will run and not grow faint, that hope will renew your strength, that you will soar through this difficult time on wings of angels as they bear you up.
    Still lifting you to the Father.

  34. Oh Corey…I just wish I could take this all away from you and your family. I know it hurts…your thoughts bring back so many memories…we are coming up on two years since my father “went home”. I still miss him so…but I know he’s in a better place…free from pain.
    Hang in there…I pray for you daily.

  35. Grace and courage ~ May God fill your cup once again this morning.
    Tender blessings to you~
    Cindy

  36. Matthew 11:28 “Come to me, all you who are weary and burdened, and I will give you rest.”
    Keeping you and your family in my prayers,
    -maria

  37. Rosemary

    I am praying for you Corey.
    I wish I could help in some small way.
    You are a great person, daughter, wife, mother, and friend.
    Rosemary

  38. Corey,
    You are such a dear woman. You have shown nothing but grace and courage to all of us. I can’t believe the beauty that comes from you even as you and your family are emotionally and physically drained. Oh! to have your insight and words to express these feelings. I know this is a difficult path to go down, but you are such an encouragement and peaceful presence for your family. Corey, you see life in such a unique way. I still look at your blog first thing in the morning because I need my “Corey” fix. Your blog starts my day in a much more lovely way. I know this path you are walking is a long and difficult one. We did this six years ago with my dad who was only 72. It is a process that no one can live but you-but it sure helps to have friends and close ones to share with. Thinking of you on a daily basis with love and prayers. Laurie

  39. You are, as always, in my heart and thoughts today. xoxo

  40. Corey,
    I come by a few times a week to seek news about your dad (and you). I have been in your shoes and understand what your brother said about “steps”. And about being tired – so tired you’re not sure if you even push the button for the right floor if you go outside for a few minutes!
    But, how I loved the nights with Daddy – especially when he couldn’t sleep, as I didn’t most nights – a broken foot in a boot is not conducive to comfortable sleeping anywhere. I would remind him of things that happened when I was growing up, funny things, things that I probably had a different view of than he, but always just the joy of the two of us being there in the quiet – remembering. I’ll continue to pray for your dad and the rest of your family.
    MimiG

  41. Marva Plummer-Bruno

    Corey – I’m so sorry you’re having to go through this. I’m sure you’re all so exhausted, both physically and mentally. Sometimes God’s plans are not clear, but I will continue to pray for you and your family. You are handling this so well, much better than I would. Marva

  42. Dear Corey, all that comes to my mind right now are the words from a favorite hymn:
    “Everlasting arms of Love, are beneath, around, above. God it is who bears us on; His the arm we lean upon.”
    with love and prayers, dear friend! =)

  43. Dear Corey,
    I wish you tender moments on this great journey. Your sacred, prayerful vigil is also lived in moments of tedium, exhaustion, frustration, sadness, and great love and comfort.
    You do need someone to help, to sit in, to take your turn so you can replenish your own well.
    I’m truly flabbergasted at the suggestion, “Feed him less”. If a medical professional made that suggestion, I would be kicking them out of the room calling the hospital board immediately.

  44. annieelf

    Dearest Corey,
    Anyone who has walked this path understands your emotions completely. I know now that when I was in my darkest places, with my mom’s final illness, I was never alone. We get so wrapped up in the moment and the emotions that we forget(albeit temporarily) that God is always there.
    Love,
    Annie

  45. “. . . but to wake up and face the day with grace and courage.” And love, always love. For you not only love, but are well loved.

  46. Corey…
    More and more (((((((hugs)))))))).
    ( I don’t usually give virtual hugs but what else can I do here???)
    You are amazing.
    And of course you’re tired and in need of respite.

  47. I have walked your walk, albeit with less grace. Courage, maybe…at least that’s what I was told. Would I do it again, absolutely in a heartbeat. The most difficult decision was removing the oxygen and letting it happen and one I second guess myself about every day. Someday someone will have to make that decision for me. You are in my thoughts daily Corey, I am holding your hand from afar…ciao

  48. Corey- You are the epitome of grace and courage. Daily you are in my thoughts and prayers.

  49. HOLDING YOU IN MY ARMS, and thoughts…

  50. Corey
    I continue to pray for you and your wonderful family. You have been such an inspiration. We have also been at the hospital…
    My grandmother died this morning… she was able to say her goodbyes – she died quietly while she slept – we feel blessed. she was ready to go. I doesn’t make it any easier. She is now at peace but we will miss her. She fought hard but the Lord chose to bring her home.
    I think of you often and will pray that God continues to give you strength and peace.
    Blessings
    XO

  51. Helen Owen

    Well put-my father recently passed away and I know very well how it is. I sat with him for 3 months and every day was a blessing.
    Blessings
    Helen

  52. Mary Kate

    Dear Corey, I send you all my strength to hang on through this long time. You are in our prayers, Rafa’s prayers too. Love, Mary Kate

  53. Elizabeth

    Hugs and prayers, Corey, dear.

  54. Oh, friend, I hear how weary you are.
    My own father was physically very healthy when Alzheimer’s entered his life. It was difficult watching him go from fear at knowing what the future held to no fear, no recognition, no life as he had known it. I went from wanting to ignore it (maybe it would go away) to daily frustration to wishing it could just be over for all our sakes. But, like you, the things that would hasten the journey were not things we could allow. So we continued to care, continued to watch, continued to wait. It is truly an exhausting place to be.
    Wishing I could be there to remain awake with you, to hold the hands that feel tied, to lift your burden a bit that you might stretch and breathe without its weight.

  55. Lisa & Alfie at The Pickled Hutch

    You are exhausted and life is precious. It can be such a struggle to maintain balance between the two at times like this. In the end, it will be his decision. Hang in there sweets!
    Lisa & Alfie

  56. Karen Bennett

    I have read your blog many times before and never left a comment. Some of the things you wrote about your father reminded me of mine.
    I was pregnant with my third child,who is now 18 years old and only daughter when my father passed in my arms. He loved to play with my 2 sons. I know I dearly wished that he could have at least gazed on my little girl before he left this earthly realm.
    My father’s story is different. He was ill for so much of his life. His very tenacity was an inspiration to many. We didn’t know that until his funeral. (When people we never met came to talk to us about him) He battled stomach and bowel disease for many years while working in a steel mill. He then grew weaker with lung disease, then tumors. He never gave up though.
    Like you I sat with him many days in hospitals, repeatedly through periods in different stages. During the final few months, his weight got down to 68 pounds. I could actually lift and move him in the bed by myself. But all this is beside the fact that his spirit dominated his body. The doctor’s told us he lived at least 20 years beyond what he should have, simply by will, will to live and see his grandchildren, to enjoy simple pleasures. I learned so much from that simple, generous courageous man.
    God Bless you Corey and your family as you struggle and cope and accept. I relived so much today, reading the last few journal entries.

  57. O’ that I had wings as a dove has, I would fly away in flight, I would take lodge in the wilderness, I would hasten to a place of escape for me, from the rushing wind, from the tempest. …evening and morning and noontime I cannot but show concern and I moan–and He hears my voice.
    ~Psalm 55:6-8

  58. May God grant you an abundance of grace today and in the days to come.
    Thank you for your honesty.

  59. Corey, my prayers for all in your family who are suffering pain and exhaustion at this difficult time.
    You are such a unique person and have brought joy to so many as we on the web share your art and insights. I have felt so honored to share the story of your life’s journey.
    I walked this painful path with my mother toward her death. The way was difficult but the end was very comforting and remains so 15 years later. I worry that you may not be receiving all the comfort and help that you need as you take these difficult steps.
    As wrenching as this is, you know in your heart that each of your parents will die some day. Let them know of your love and thanks and that you want their deaths to be comfortable and a time of celebration when joining their Father in Heaven.
    Skilled hospice workers can help you with these steps. The suggestions to “feed him less” or to send an exhausted family home so that the family and the patient can rest may not be stated well by medical professionals who are themselves in pain.
    Do you understand the patient care directive “Do not resuscitate.” This step, and others equally difficult are things that Hospice can help you with.
    Does your father wish to live more time in his current condition or is he more eager to finally meet God. Is he comfortable that your Mother will be OK when he leaves her? Does he know that all he cares about will be loved and taken care of. Have you all given him permission to do what he wants to do. Does he want to die quietly in a bed in his own home? Does he know that you will be OK Corey?
    Please forgive me for my bluntness but I have not read that others have helped you with this. My prayers for you and yours.
    Deanna

  60. Dear Corey, I know it sounds very trite, but I do feel your pain having been through a somewhat similar situation during my father’s final illness.
    I spent two months away from home and then relocated my parents to be on the other side of the country to be with me and my husband. My father went from one hospital bed to another. My mother had dementia and couldn’t be left unsupervised.
    Seeing you on a similar path keeps you in my thoughts and prayers. There is such beauty in what you are doing, dear Corey, and I know that you know you will never regret these days, but the process is so tiring and sad.
    Hugs to you sweet lady.

  61. Corey,
    I am so sorry, I understand a bit of what it happening with your family. You are in my thoughts and prayers. When I read your entry today this was my thought for you,
    “Be still and know that I am God” (Pslam 46:10)
    Peace to you and your family.

  62. Corey- Though I too have walked this path ( for 4 long years) with my Dad, I must tell you there is no emotion you will feel that isn’t okay. We too are only human and at times need to be rescued; emotionally, physically and spiritually. Share all your emotions. witholding them will only erupt in some less constructive way later.
    Are you able to coordinate home care? My Dad only wanted to go home and when we were able to arrange it safely for him he was finally at peace with all that had happened and thanked me for fighting for him. That was when the world lifted from my shoulders because I knew he understood I had done all I could do. I keep you all in my prayers.

  63. Grace and Courage. As you have been. As you ARE.
    Psalm 28;1: Unto thee will I cry, O LORD my rock; be not silent to me….
    Psalm 29;11: The LORD will give strength unto his people; the LORD will bless his people with peace.
    Psalm 30;5:…weeping may endure for a night, but joy cometh in the morning….
    Psalm 31;19: Oh how great is thy goodness, … which thou hast wrought for them that trust in thee before the sons of men!
    20: Thou shalt hide them in the secret of thy presence …. thou shalt keep them secretly in a pavilion from the strife of tongues.
    21: Blessed be the LORD: for he hath shewed me his marvellous kindness in a strong city.
    22: For I said in my haste, I am cut off from before thine eyes: nevertheless thou heardest the voice of my supplications when I cried unto thee.
    23: O love the LORD, all ye his saints: for the LORD preserveth the faithful, and plentifully rewardeth the proud doer.
    24: Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD.
    I have been going through some difficult times also, and a friend suggested I see myself in the pavillion in Psalms… protected. The image has helped me, as I hope it aids you.
    Love , Prayers and Understanding,
    Ciretta

  64. Brenda Kula

    Beautifully written! I was mesmerized by your words. And to think you’re likely not at your (writer’s) best at this most trying time! You are certainly in my thoughts. And I shall certainly put you on the list and come back for an update.
    Brenda

  65. Marie-Noëlle

    You definitely need a rest, Corey.
    Your mind is still writing beautiful words that your hands can type…
    Your mind is seeing beautiful pictures that your hands can photograph…
    Your mind is creating a marvellous blog that your hands can connect to us…
    Both your mind and hands are tired and need a pause … alike your sweet mum’s did the other day.
    What about watching a good movie?
    I bet that you can stop by to watch a good oldie film…

  66. Corey and Dolores, in that dark corner you must remember you are surrounded by the Light. We are with you in love and spirit.

  67. I wish I could be there, just to sit with you, to offer you strength and rest in this emotional, exhausting time.
    Eunice

  68. I feel your pain in my heart. Know that I am praying for your father and your family. For three weeks we traveled an hour to stay all day with my father, then an hour back each night filled with dread. It’s an exhausting process. There is no way that you can rest. I know I couldn’t sleep and all the time my mind was churning. You are in my thoughts. Please accept my virtual arms around you. Peggy from PA

  69. Hi Corey,
    I really think You must be the best of daughters to sit by Your father side every day! I know this will be a treasure for You when it´s over. I know I would like my children to be near when it´s time for me.
    Liisa

  70. I have been where you are and these words helped me and my family…
    God has not promised skies always blue,
    Flower-strewn pathways all our lives through;
    God has not promised sun without rain,
    Joy without sorrow,
    Peace without pain.
    But God has promised strength for the day,
    Rest for the labor, light for the way,
    Grace for the trials, help from above,
    Unfailing sympathy, undying love.
    –Annie Johnson Flint

  71. Massilianana

    Dear Corey ,
    Your words brought tears to my eyes . Led me to break my silence . I wish I could be your neighbour in California , bring you something nice to eat or drink , or a magazine or flowers , offer to help you with the house or the shopping or the cooking or mowing the lawn ( well , maybe not the lawn…)… Just to help you , be with you along with what you are going through with your family and daddy Amaro , without crowding you or taking more of your energy . I can only send you best wishes , friendly admirative thoughts , I think you are an amazing person .
    Tudo de bom pra voce e a sua familia ,
    Take care .

  72. As I sit and read your stories… I usually have many to catch up on … I see myself in your shoes. I feel your pain… your exhaustion… your emotions… I lost my mom in 1981 and my dad in 1984… I was not with my mom when she passed … that broke my heart…. she was young …only 57.. but she suffered most of her life and was as strong in spirit as anyone I know… I wasnt with my dad when he took sick … and before he went into a coma… that broke my heart… though I do know he heard me and knew I was with him before he left me too… he was 62
    You need rest… that is a must… that is important and that is something you can not take away from yourself…. and while times are difficult for you … to watch your father hurt so…. cherish each and every single moment you have with him…
    He is so lucky to have such a loving…. caring … daughter such as yourself to sit with him and love him and you are so lucky to have him too..
    You are loved … not just by your family but by people who dont know you personally but through your life …through your blog..through your stories..
    You are beautiful …
    HUGS TO YOU
    JO

  73. Liz Ness

    HUGS. I’m so sorry and wish that I could ease your burden. But, you are right…there’s not much a friend can do, but offer love, support, and a shoulder (virtual or present) to lean on. We must go it alone for the hardest choices. Still, my heart and prayers go out to you and your family.

  74. Julie B.

    Corey, In times of darkness I have found that scripture and nature are a healing balm!
    “To every thing there is a season, and a time to every purpose under the heaven: A time to be born, and a time to die; a time to plant, and a time to pluck up that which is planted; A time to kill, and a time to heal; a time to break down, and a time to build up; A time to weep, and a time to laugh; a time to mourn, and a time to dance…” Ecclesiastes 3
    My thoughts and prayers continue to be with you and your family!

  75. Corey,
    Please take care of yourself and tell your mother to do the same. This is an especially draining experience you are going through, and you don’t want to make it worse by making yourself sick from lack of sleep, excessive worry/anxiety, etc. Which I know sounds easier than it actually is. But take it one day at time and try to be good to yourself. Many, many hugs are sent your way.
    I really can’t believe the insensitivity of some people… Sorry you had to experience that.
    Please take care of yourself. xo Ariane

  76. Breath in,breath out,sleep when you can,pray when can,cry when you must and mostly ( as you are doing,in such a wonderful selfless way) Love. God Bless you and your family Corey,and may he grant you strength.

  77. frenchgardenhouse

    Dear Corey,
    Still lifting you and your family up to our Father. Nothing we can write here will change how it IS. But know we care, and think of you with love.
    xo Lidy

  78. herhimnbryn

    My Dear One,
    Holding out my hand to you, take it, just for a while. Sit. Breath deeply and softly.

  79. Oh, Corey. I wish I could give you a big hug tonight.

  80. Wendi Kelly

    Corey,
    I am here every day, praying for you and looking in, sending you strength and good wishes for you and your family.
    Some days,I leave with a smile and no comment, and just more prayers, added to the many that you already have flowing to you from around the world.
    But today I want to say that it isn’t necessary for you to be strong and couragous every day. Like your mother, only a few days ago, the woman who is your rock, you also may retreat for a day or so and regain your strength. Get some rest. During the day, lay around. Pet the cat. Sleep. Do nothing. Better yet, scream to the rooftops if you want to. God will listen and so will we. Even Jesus Himself took refuge to restore his soul so that He might minister to others. He that had more courage and Grace than us all. Taking care of yourself will never diminish all that you are and all that you have become.
    I wish you rest and the peace that transcends everything.
    You are a gift.

  81. collette

    Corey~
    You are gracious and courageous.
    May God continue to bestow these upon you.
    I couldn’t think of a better way to remind yourself than with the words, “Do unto others as you would have them do unto you.” Words to live by.
    Your family is truly blessed to have you with them at their side, as I know you feel the same way about them.
    I pray for rest and peace for all of you. Much love and affection.
    xo

  82. corine @ Hidden in France

    I hurt for you Corey, but your words are beautiful.

  83. Corey, I know you are exhausted. I can feel all your feelings in your words. I know what this feels like.
    Is there someone who can do two nights in a row for you and let you take a rest?
    You will be better able to be with your dad if you get a break.

  84. Elaine L.

    How well I remember the “one step forward and two steps backward”. Fortunately, my father did get better, however now I have let down my guard. I realize I will have to go through the exhaustion and emotion, again, some day not in the too distant future (my dad is 85).
    My father, also, has a strong heart, which is what keeps him going, even though he has kidney failure and prostate cancer.
    I think the person going through the illness and their loved ones finally reach a point of total surrender, and then, perhaps the end comes as a blessing. It actually doesn’t hurt as much as living with the suffering. You are going through the grief process now. Later, death will seem like a butterfly.
    ~elaine~

  85. Elaine L.

    I was, also, going to say that life is never long enough for those we love. I don’t think we’re ever ready to let them go even when we know they’ve lived a long fruitful life.
    There are always more stories and wisdom to share.
    ~elaine~

  86. Lisa-Vet

    Corey, still with you, I know how hard it is for you. Hang in there. My prayers are with you. Big Hug, for your Dad. God Bless You.

  87. Friend Corey,
    How my heart goes out to you and your family. I know with so many comments before mine my words hold no great worth but it does my heart good nevertheless to tell you that you are in my thoughts and prayers along with your Dad and Mom…..In His Love……Betty @ Country Charm

  88. Dee/reddirtramblings

    Aah, Corey. My mom has partially recovered, and you are stuck in the same place. Two steps to the side. Sigh. That is the stuff of life sometimes, isn’t it?
    You are in my heart, my friend. We all share your burden, your hope.~~Dee

  89. Betty @ She’s Sew Pretty

    Corey,
    So many people have given you wonderful advice, so I won’t try to. Just know that I am thinking of you and wishing you peace.

  90. the farmers wife

    I am so glad to see that you embrace the truth about your family’s situations and dwindling energies. Facing these things head on and seeing them in the light of day will help avoid some terrible pitfalls.
    Hanging in limbo is the worst place to be. Can your father communicate his wishes? It sounds like he still has a strong will to live and you are respecting that.
    There are no simple answers and God has his own timetable. You must take care of yourself, your mother and other family members who are committed to his emotional support. Giving too much will leave you empty, perhaps at the time you’re needed most.
    Suzanne, the Farmer’s Wife

  91. Dear Corey, when I read your blog I am inspired by your steadfastness, love, and honesty. Anyone in your shoes would be trembling with exhaustion now, but you manage to put one foot in front of the other as you travel such a long, difficult path. I am thinking of you all and I pray that your journey will be blessed with God’s light in many, many ways.
    Julia

  92. Corey – I am constantly in awe of your stregth and always inspired by your wisdom and grace. Sending you virtual ((hugs)) and continuing to pray for your family and especially, your dad.

  93. Corey,
    I can’t even imagine the mental and physical exhaustion that you and your family are dealing with!! Hang in there! There are many out that praying for you all!
    Love you!!
    Morgan

  94. Corey, I wrote to you yesterday about my mom being hospitalized for 5 months and finally transferred to a convalescent home a week ago. Well, this morning she took *one step* back. She has developed fever, vomitting and diarrhea. I am waiting for the ambulance to take her to the hospital. It is starting all over again ! Does it ever end ?
    Hugs,
    Maria

  95. mary ann

    xoxoxoxoxo mary ann

  96. I know how you feel, I really do. This past year I had weeks like that…with my son. We almost lost him..with my Dad…we did have to let him go.
    There is nothing but Grace to depend on. Our own strength is not enough. I pray you will receive Grace in abundance. Blessings to you now, to your father, and for the future when it is done unto you as you do unto others. None of us are perfect, but with Grace we ARE enough.

  97. Alison Gibbs

    Corey it is such a difficult time, the sitting, the watching, the waiting. So, so difficult
    Alison

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